Friday, May 1, 2009

TGIF

Yah it's Friday! I have been looking on WAHM for ideas to sell my stuff. They have a lot of cool stuff on there. Thank You so much Just a Girl. Now I have a lot of ideas. I will let you know when I get things up and running.

Emma finally lost her tooth. She's happy it's out. I hope her perminant tooth is fine. She has a chance of it being bigger and an odd shape. She will get her firs set of braces around 8yrs old. Her Dr. also told me that she will have about 25 differnt facial looks before she is 7. That is because her scare doesnt always grow with her face. Some days you can really tell others you can hardly tell. It gets to be very emotional some days. She will come home and tell me that someone asked her what was wrong with her face, and she will tell them that she was born that way. Such a big girl I have. I am so proud of her.

Well we will be of to our land today. I am so excited because my mom and dad are there waiting to see us. I can't wait. I hope everyone has a good weekend.

Monday, April 27, 2009

Monday

Good Morning, it's Monday again. I'm not a real fan of Mondays. Emma was excited about today, it was her turn to bring treat for school. That means she's the leader and she gets to bring something for show and tell.

Thank you Just A Girl for the good ideas about the wipes. I'm going to go on there today to have a look.

We got the land opened up. How exciting to have that all done. I can't wait to see my mom and dad. They are in Kentucky right now seeing my sister and brother n law. They should be here by Friday. The kids will be happy to see them. My son Diesel is taking it the hardest. He misses my Dad really bad.


Diesel is 4yrs old. I got pregnant with him right after Emmas second surgery at nine mos. Not expecting that one. He is such a good boy though. They are really close in age so they get along for the most part.

Hope everyone has a good day!

Thursday, April 23, 2009

Good Morning Everyone!

I wasnt able to get on yesterday so here I am. Emma has another loose tooth but she wont pull it. It is her front one, and it is barely hanging on. Today she has twin day with her best friend. She is so excited.

This November she will go to her Dr. appt. in Milwaukee. That is the all day appt. to see 11 Dr. She doesnt like it very much. It is so nice because we only take her and we stay at nice hotel so see can go swimming. Kind of a reward after the long day. The last one she got 100% on her speech which is awesome.

My mom and dad come home next weekend so the family is so excited. They go to Arizona every year for the winter. The kids cant wait! So this weekend we go to our land to get it all set up for them. Hopefully they will be there by May 1st. It will be an adult weekend, my two sisters and there husbands will be there to get their campers ready also.

So I have an idea about babywipes, I make my own, and I want to sell them, but have no idea where to start. If anyone out there has any ideas that would be great to here from you. I dont even have a design or anything. I make them in a tupperware container.

Well I hope to here from anyone that needs to talk, did you know that 1 in every 700 babies is born with a cleft palate or lip. That is alot! So love your baby, dont be ashamed what they look like because there is help out there and wonderful Drs. too!

Tuesday, April 21, 2009

Emmas Second Surgery

Emma was 9mos old for her second surgery. It was April 41,2006. We had to be there at 6am, but we didn't have to stay over night for this, thank God! When she was born her cleft went into her gums, and made a split between her front tooth and eye tooth. Dr. Denny also had to make sure that all of her tooth buds were there. So anyway we had to teach Emma how to drink out of a cup without a lid because she could not suck on anything at all. See your gums are very soft, and after surgery they could tear very easily.

This time they were able to give her what they call "happy juice" before taking her back. I was so happy about that! Her surgery took about 3hrs, but seemed like 10. When they were done they called us to the room where she had to stay until she woke up and ate and drank something. It was so amazing because she had no idea what happened. It was like she just woke up from a nap.

I will rave about her Dr. till the day I die. He is such a wonderful surgeon. Very personable and even better he looks like Santa Claus. He has been doing this for about 20yrs, and only does cranial/facial. When he came out to talk to us before we got to see her his eyes lit up with a big smile on his face. He was very happy to tell us she had all of her tooth buds.

When Emma is 6 or 7 she will be going through another surgery for the bone that holds your teeth in. Hers is split and she only had about a 5% chance for it to grow back and hers didn't. So I'm growing her hair long because they will take the bone from her skull. So I want it to be not that noticable in the back.

Thanks for listening!
Davina

Monday, April 20, 2009

Children with Cleft Lips

I was 29yrs old when I was pregnant with my second daughter Emma. I was so excited to be having a second child considering my first one Akoya was already 12ys old. I had labor pains all the time so my doctor finally decided to induce me 3 weeks early. Believe me I was more than ready.

It was 6am on July 3rd,2003 my doctor came in and started the procedure. I finally had her at 8:32pm that night. While my doctor was delivering her the first thing I saw was her face. The first thing was almost panick. Her face looked deformed. They told me she had a cleft lip, but her palate was fine. It was a unilateral(one side) cleft. I had never seen a cleft lip before, so I didn't know anything about it. I remember my mind racing with questions, but nobody had any answers.

I didn't call anybody to tell them I had had her. I didn't want anybody to see her and judge her the way she looked. Even though I think I was. I had all this guilt in me, like what did I do wrong. My family kept telling me everything would be ok, but I never believed, because I was lost in this world of my poor little girl, look at her face.

I decided to breast-feed because they had special bottles to feed cleft babies,and basically you end up force feeding them. It was harder than I thought it would be. You had to make sure the hole in her lip was covered otherwise she could'nt get any suction. I felt my life was falling apart right in front of me and there was nothing I could do about it.

We brought her home on July 4th. I sat in the back seat with her watching the fireworks, crying the whole way home. I still didn't want anybody to see her. My family was there waiting there for us to get home. Everybody acted excited over her and I wanted to know if I was the only one who felt this way about this poor little girl. I was on the computer constantly looking up anything I could find to help me understand. I needed to talk to someone out there who was in the same position.

Her first surgery was Oct.29, 2005 five days short of her being 4mos. It was very stressful not knowing what she might look like when she came out of surgery. At this point I was very protective of her. I loved her smile, how big and opened it was. She was my angel from God.

When she came out surgery all I did was cry, I looked at her and she didn't look like my daughter at all. She had this little smile so perfect and round. She was beautiful,but she did not look like my daughter at all. We spent 2 nights at the Childrens Hospital, what a nightmare. Her arms had board restraints on her elbows so she couldn't touch her mouth or pull on her IV.

We ended up leaving on Halloween, which was fun because we went around the hospital trick or treating. For 2wks she couldn't have her nuk, and she didn't sleep at all. Her lip was taped together without stitches so I was nervous about that.

Emma Lynn is now 5yrs almost 6. I consider her my angel sent from Heaven. She knows everything she needs to know about her cleft lip so she can answer others that have questions. I look back and I feel so bad about the way her first day on earth was because I didn't think my daughter was beautiful. I wasn't happy for a long time because I didn't have anyone to talk to about my situation. Everybody would try but they were not in my position so I thought it was easy for them to tell me anything I wanted to here.

I want people out there to know there are alot of people to talk to, and I'm one of them. If anyone you or anyone else knows going through this please have them write to me because I know they need someone to talk to.

My 3 children one with cleft

I am a stay at home mom with 1 child not at school. I am not sure I enjoy it as much as I thought I would, but child care is so expensive. I would really love to work from home, but I don't know where to start. So I started blogging to meet new people. My son(Diesel) is 4yrs old, and will start Pre K this fall 4 half days a week. So it really doesn't give me an opportunity to really go and get a job.

I have a 17yr old(Akoya) who is a junior in highschool. She loves track, volleyball, and dancing. I had her at a very young age so we get along more like friends. My husband(Jeff) is like a dad to her. Her biological father doesnt have contact with her. So she calls Jeff Dad. Any advice to help her cope with this would be appreciated.

I have a 5yr old(Emma) she is my angel from heaven. She was born with a cleft lip. I had know idea when she was born. It was very hard to cope with because I had never seen one before. It was rough because I didn't have anyone to talk to who had gone through the same thing. So I had to research on my own. I felt I had engolfed my whole world with her. She had her first surgery at the age of 3mos., which you can imagine how difficult that was seeing your baby go off to surgery. Her next surgery was at 9mos. She will have a total of about 6 more.
I have taught Emma all about her cleft lip because if someone has questions they can ask her and she knows what to tell them.


If anyone out there has any questions about cleft lips or just needs someone to talk to, don't be afraid to ask.

Vacation

We just got back from Walt Disney World last week. My daughter was pretty disappointed. Maybe its because she is 17, Im not sure. We did have a lot of fun at Universal Studios and Island of Adventures, Sea World. It was a lot more expensive then I expected. I could not believe all of the people that were there considering the economy. If I new it was going to be that bad I would not have booked it last October.


Hope to hear from you,

Davina